Rare diseases work as a plague on patients and their families–few understand their plight and even fewer have sympathy for the victims of these diseases.
What is a “rare disease?” A disease that lives as an “orphan” condition in the House of Medicine, defies diagnosis, and one that consists of vague and changing symptoms. The National Organization for Rare Disorders has a list of rare diseases that can be found on their website by clicking here.
If you have vague symptoms and suffer from the symptoms that prevent you from being as productive as you feel you should be, check out these diseases and explore the concept that whatever ails you is not “all in your head” but perhaps on of these rare disorders or diseases.
Laurie Edwards, a writer who lives with a rare disorder, can be an invaluable guide for you. Drop by and check out her website by clicking here. You can learn more about Laurie by reading her book, Life Disrupted: Getting Real About Chronic Illness in Your Twenties and Thirties.
1 response so far ↓
1 Undiagnosed // Feb 26, 2009 at 12:37 pm
No one truly understand the pain and suffering unless they go through it themselves. While some have an understanding and support, you honestly feel like you’re living in your own little world….
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